Spoke to Chicago
Hi Everyone,
Just got off the phone with the Scientist from Chicago. There are a few phase one studies that he feels Grace could qualify for. Of course things are not so easy. Grace will have to stay clinically stable without Chemo for 3 weeks prior to being accepted into a trail. These trials are phase one (meaning one step up from mouse medicine) but really what do we have to loose? This doc recommended we get a CT scan ASAP to determine whether the VP16 (chemo Grace is currently on ) is doing anything. If it is he recommends 1 more round of VP16, if it's not we may attempt to keep Grace off of it for 2 more weeks (she's already been off it 1 week as her "rest"week) in order to qualify for a study. We'll be at Sick Kids tomorrow being overbearing, obnoxious parents insisting on an immediate CT scan... we'll see how it goes.
Pray for our baby.
Love,
Les
Just got off the phone with the Scientist from Chicago. There are a few phase one studies that he feels Grace could qualify for. Of course things are not so easy. Grace will have to stay clinically stable without Chemo for 3 weeks prior to being accepted into a trail. These trials are phase one (meaning one step up from mouse medicine) but really what do we have to loose? This doc recommended we get a CT scan ASAP to determine whether the VP16 (chemo Grace is currently on ) is doing anything. If it is he recommends 1 more round of VP16, if it's not we may attempt to keep Grace off of it for 2 more weeks (she's already been off it 1 week as her "rest"week) in order to qualify for a study. We'll be at Sick Kids tomorrow being overbearing, obnoxious parents insisting on an immediate CT scan... we'll see how it goes.
Pray for our baby.
Love,
Les
posted by Lesley at 8:59 p.m.
1 Comments:
Hello. I am an American, living in Ontario now with my family. I am from Chicago though so wanted to let you know if you need any assistance at all with anything having to do with Chicago (now & if you get to go there), please let me know & I will see what I can do. You can email me at terrirhodes@hotmail.com.
Terri
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